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DiscussionAnyone been diagnosed with arachnoiditis after spine surgery?
Spine Health | Last Active: Sep 6 4:23pm | Replies (179)Comment receiving replies
Replies to "I was prescribed Belbuca 75mg. I don't like the delivery system but I tried it for..."
Yes, the Fentanyl did work for me but every doctor I saw for pain refused to prescribe it because of the "opioid crisis". Like many others who don't really understand what it's like to be in pain, they told me it doesn't really work and it's way too strong. How do they know if it works if they aren't the ones in pain? I apologize, I'm pretty sour about it. What works for one person doesn't always work for another.They also don't understand that pain patients aren't the cause of the opioid crisis yet we're treated like drug addicts.
As far as the Belbuca goes, I haven't tried it yet. My doctor told me we would wait until after the holidays because she didn't want me to be sick. Apparently, the most common side affect is being nauseous and people report throwing up constantly for like a month. Your body needs to get used to it. After that they report great pain relief for all types of pain including nerve pain. You are very lucky to not have had any side affects. I'm wondering if maybe it didn't work because they start you off on the lowest dose possible and then are supposed to titrate you up. I would see if they will let you give it another try. This time stick with it until you reach a dose that works? I think I'm going to give it a try but if I'm throwing up constantly I may have to stop. Now I have some nerve damage that involves the bladder and bowel (from the Tarlov cysts) so I'm sure you can imagine my point with that. I threw up for a month with the Fentanyl but I think it was because my doctor started me out at 50 mcg rather than starting low and going up. He just told me my body would get used to the medication and it would stop... and he was right. I didn't even care at that time about throwing up around the clock because it was very effective. I was in so much pain I couldn't sit/lay still and I couldn't sleep so I thought sticking it out for a month was very worth it. My main concern about trying Belbuca and starting at the lowest possible dose is how bad the pain is going to be. It scares me to think about it. By that I mean, starting low I won't have any pain control until I reach a dose that helps. If I get to try it I'll respond to this post again to let you know how it goes. Also, if you try it again please stick with it and let me know how it works for you. Until then, hang in there!