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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)

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@dbeshears1

@jinxedroot93 i too sometimes feel insecure with the feeling I have with gas pedal and brake, and do exercises and stretching, and don’t drive in the dark so I have the ability to glance down at my feet. I had undiagnosed neuropathy that started 5 yrs ago at age 51. I lived in SC near Myrtle. Seems for every nit picking thing I was referred to MUSC. For the 3 different medical issues, One being neuropathy, I got ZERO results from them. It cost us a lot of $$$, time, and travel, a lot for a 51 yr old who now lost annual income to boot with this sudden disability. We decided to leave SC and move inland to the state of NC where I could have comprehensive medical care in my backyard vs having to travel for it. In doing so and transferring medical records to new home, and at the start of the Covid pandemic, I discovered a CT scan report from MUSC that was almost a year old and mentioned an abnormal growth in my neck. They never told me or my family, my admitting doc there, nor my PCP!! I got on it right away, trying to line up Dr’s in NC, and yes, of course it was cancer. Anyway, because of my personal experience, I have a hard time recommending MUSC for anything out of the ordinary, routine medical needs. Run, walk, or wheel yourself to better help. I did find Duke much more involved with neuropathy, but from SC, that too was a hard and expensive relationship if they only wanted to “watch” me and check in with me every 6 months vs having an action plan to try to diagnose. Good luck and safe driving!

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Replies to "@jinxedroot93 i too sometimes feel insecure with the feeling I have with gas pedal and brake,..."

Thank you. I have been considering duke because I live in the Columbia area so it's about the same drive time wise as MUSC. I get losing your income over SFN. I was a licensed cosmetologist but had to stop and drop my license because I started having spasms and would throw equipment at myself or across the room. That was 2 years ago. Now every job I get I struggle bust for a few months then end up with worse symptoms and end up losing my job at some point. It's been a vicious cycle but my fiance and I are going to start a 3d printing company early next year so fingers crossed it will work out for us.