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@axeddie

Have any of your doctors said what brought on or caused the neuropathy?

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Replies to "Have any of your doctors said what brought on or caused the neuropathy?"

I’m not sure if the question is for me, but no clue. 5 yrs ago I was admitted with a UTI at the same time coincidentally, but bloodwork didn’t show GBS. All they did was bloodwork in SC. I’ve since moved to NC and I got sidetracked by having to prioritize cancer treatment, something that showed up in a test in SC, but they sat on that report without telling me and I accidentally discovered it in a report as I was moving 8 months later. Anyway, I’m now advocating more strongly for help understanding this 5 yr neuropathy. I recently had a nerve biopsy confirming severe atonal loss (no cause given) and waiting for a second opinion on meaning of some small inflammation found. My current neurologist will not do an MRI because he doesn’t think it will tell us anything. That too will be discussed with my 2nd opinion. Otherwise, my current neurologist has not offered up a next diagnostic plan, seems he thinks the quest for answers is time to end. So I’m keeping my eyes and ears open, trying to learn, and live with whatever… there are so many positive, knowledgeable, and helpful people here.

Mine was an extremely bad case of shingles.

my left leg is due to less blood flow to it. I only have 75% blood flow to it. The right leg is affected, but have 100% blood flow. Mine is the same way with a lot of you, it hurts more when sitting or lying. When sitting after like 10 minutes my left foot is vibrating very badly. Hopefully when I go see the vascular doctor in January, I still have4 the same amount of blood flow in my legs.