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@auntnanny

sounder27 Toby is short for the word tobramycin. Mayo's say they are having great results but that it takes a few months. They recommended (to me) 4 weeks on and 4 weeks off. Then repeat for several months. Windwalker on this site has used it successfully and I'm trying. It is an inhaled antibiotic that goes directly to the lungs and I believe one bacteria it targets is pseudomonas (which I have). They asked me to use a different dispensing cup from the one that usually comes on a nebulizer. This one breaks it down into a fine mist. I believe it is available (not costly) on Amazon and I'll get the name of it if you are interested. I told Mayo Doctor I had been on this two weeks and was still coughing and he assured me that we needed to stay longer. Two weeks would not take care of it. I just hope he's right. Perhaps Windwalker will come on and help you more with this product. I believe she said after using it she was cough free for a couple of years. Sounds like heaven to me. I believe tobramycin is an older antibiotic but the new way of getting it into your lungs seems to be what they feel is so important. I hope this is helpful to you in some way. Windwalker is also with Mayos (Florida) and I'm with them in Minnesota so I believe it is what they are recommending.

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Replies to "sounder27 Toby is short for the word tobramycin. Mayo's say they are having great results but..."

To auntnanny. Thanks so much. I will mention this to my doc when I see him in 2 weeks. I don’t know how it will be with my afib. That seems to be the problem for me not taking the big 3. The mycin type drugs activate the arythmias and cause me to go into atrial flutter. But the delivery system sounds like maybe it would bypass a systemic reaction?? Here’s hoping. I’m willing to try whatever I can at this point.

To auntnanny. I am from Rhode Island and i’m wondering if I should make an appt with the Mayo in Rochester. It would be closest to me.

auntnanny. I am going to make an appt with the Mayo in Rochester. I remember that you told me which doctors that you saw there. I will be coming from Rhode Island and will also need a hotel for my son and me. Any recommendations that you could give me regarding specialists and hotels in the area would be much appreciated. I just had a car scan yesterday and my Mac has progressed much more than was anticipated. The coughing and sleep apnea have put a great strain on my heart and afib condition. I am getting very weak and exhausted.