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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "sounder27 Toby is short for the word tobramycin. Mayo's say they are having great results but..."
To auntnanny. I am from Rhode Island and i’m wondering if I should make an appt with the Mayo in Rochester. It would be closest to me.
auntnanny. I am going to make an appt with the Mayo in Rochester. I remember that you told me which doctors that you saw there. I will be coming from Rhode Island and will also need a hotel for my son and me. Any recommendations that you could give me regarding specialists and hotels in the area would be much appreciated. I just had a car scan yesterday and my Mac has progressed much more than was anticipated. The coughing and sleep apnea have put a great strain on my heart and afib condition. I am getting very weak and exhausted.
To auntnanny. Thanks so much. I will mention this to my doc when I see him in 2 weeks. I don’t know how it will be with my afib. That seems to be the problem for me not taking the big 3. The mycin type drugs activate the arythmias and cause me to go into atrial flutter. But the delivery system sounds like maybe it would bypass a systemic reaction?? Here’s hoping. I’m willing to try whatever I can at this point.