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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@sounder27 @lindam272, ans all. BEWARE stem cell therapy. It is a scam. I confered with pulmonology dept ar Mayo. They said that technology is "not there yet. It will be in the future, but it is 'not there yet'." There IS a reason that insurance doesn't cover it. I have read many conversations in the 'Lung Health' group where patients paid between $9,000 - $16,000 out of pocket to get stem cell therapy for their lungs with zero results. Most of the patients that posted this have idiopathic fibrosis and become very desparate. Mayo Clinic in Jacksonville has a new building under construction specifically for lung rejuvenation research & lab. This lab will refurbish donated lungs to make them viable for transplant. The reseach will include reproduction of lung tissue using t-cells. These are only several great things they will be doing in the field of pulmonology.
Replies to "@sounder27 @lindam272, ans all. BEWARE stem cell therapy. It is a scam. I confered with pulmonology..."
To windwalker. Thanks for the update and how encouraging that research is being done at Mayo with hope for the future!
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Hi windwalker and all! This is interesting because IPF reminds me of NTM! I never heard of this disease until I got it! Well in 2002 it was the very first time I heard about IPF. That’s when my late husband of 29 years was diagnosed IPF. We lived in NY at the time and I tried to get him the best doctors in NY. But he did not get a transplant and he died 18 months later in 2004. I hope and pray that this will be available soon and people could get some help. He was only 54.:) life goes on! Rita.