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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@pfists

@spencersok
Interesting
I also emailed the company yesterday. I just sent it to Whom it may concern:
I hope we hear more from them. I'm so glad they are working on this powder form of Nitric Oxide. I watched a video on YouTube yesterday of the CEO of the company.
Shari

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Replies to "@spencersok Interesting I also emailed the company yesterday. I just sent it to Whom it may..."
Jo Ann K | @jkiemen | Apr 25, 2019

@spencersok @pfists @mariierod123 @angiejohnson I had my follow-up after the Lung Biopsy. Said it was a Granuloma. Now I have to wait for the Cultures, try a video swallow study and visit to ID. I am going to start making arrangements to see if I can get any improved coverage for National Jewish or for Mayo in Rochester.

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heathert | @heathert | Apr 25, 2019

@pfists Hiya, they are usually pretty good at replying, hope we here from them soon. I think they had a trial at the beginning of the year so would be good to hear about that.

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