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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@jod12

I'm so thankful for this thread . I hope you all continue to share your findings . My BFS started after a bad bacterial strep A infection that lead to sepsis shock . Around three months later I went through severe emotional stress and that's that's the twitches begun. Symptoms are worse when I am sick but the trouble is I'm getting sick all the time sometimes once a mo the sometimes twice a month . I do think there's a stress and sleep related aspect to mine. and I'm currently sick so this isn't helping much but when not sick what seems to help is telling myself I'm healthy , I'm safe and trying to think positively about the trauma that I believe led me to get this including the sepsis shock. When I start worrying about my health and my body my pains and twitches get worse. That's all the observations I have for now. I've cut out sugar and bread mostly and am trying meditation and breathing now. I will keep sharing whatever I find. My blood work shows positive anti nuclear antibodies speckled and my liver blood work its not looking good . I also have petechiae and kerastis pilaris

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Replies to "I'm so thankful for this thread . I hope you all continue to share your findings..."

Welcome @jod12, Thank you for sharing your experience with BFS. I think you are right about stress making it worse and causing the symptoms. Here's some information I found that talks about the stress...

"Symptoms of BFS also appear to be a cause of stress and anxiety for people who have the condition. It is unclear if this stress and anxiety make symptoms worse, though many people report that it does. If stress does exacerbate the symptoms, then some people could find themselves in a cycle of BFS symptoms and anxiety." --- https://www.medicalnewstoday.com/articles/320388#symptoms

The article also mentions that meditation, yoga and listening to calming music may help reduce the stress or anxiety along with a few other tips. You mentioned being sick a lot and that is not helping. Have you seen a doctor about what may be causing you to be sick?

I have body pains, twitches, and cramping feelings as well for a few years. also had a positive ANA but nothing else out of the ordinary. hope your doing well! wish you the best. this isnt fun to deal with. How are you doing now friend?