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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@sounder27 I looked into the stem cell therapy at the Lung Institute a few years ago. I talked to my Cystic Fibrosis doc about it and he asked me questions that I wouldn't know to ask. I asked them of the rep I spoke with at the Institute and here is what I found out: The trial that they did was very small so results are inconclusive. The white paper they have has never been published. My doc says that because they are injecting the blood into your arm instead of directly to the lungs, you can't be certain how much of it gets to the lung tissue. In other words, a very expensive procedure with little chance of success. I have bronchiectasis, MAC and CF. Linda
Replies to "@sounder27 I looked into the stem cell therapy at the Lung Institute a few years ago...."
@sounder27 @lindam272, ans all. BEWARE stem cell therapy. It is a scam. I confered with pulmonology dept ar Mayo. They said that technology is "not there yet. It will be in the future, but it is 'not there yet'." There IS a reason that insurance doesn't cover it. I have read many conversations in the 'Lung Health' group where patients paid between $9,000 - $16,000 out of pocket to get stem cell therapy for their lungs with zero results. Most of the patients that posted this have idiopathic fibrosis and become very desparate. Mayo Clinic in Jacksonville has a new building under construction specifically for lung rejuvenation research & lab. This lab will refurbish donated lungs to make them viable for transplant. The reseach will include reproduction of lung tissue using t-cells. These are only several great things they will be doing in the field of pulmonology.
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Lindam272 Thank you for your response. I appreciate the info