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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
To windwalker. Have you heard anything about cellular therapy at the Lung Health Institute. This is a blood draw and infusion of the blood back at large doses. Claims to treat bronchiectasis and greatly reduce inflammation.
Replies to "To windwalker. Have you heard anything about cellular therapy at the Lung Health Institute. This is..."
@sounder27 I looked into the stem cell therapy at the Lung Institute a few years ago. I talked to my Cystic Fibrosis doc about it and he asked me questions that I wouldn't know to ask. I asked them of the rep I spoke with at the Institute and here is what I found out: The trial that they did was very small so results are inconclusive. The white paper they have has never been published. My doc says that because they are injecting the blood into your arm instead of directly to the lungs, you can't be certain how much of it gets to the lung tissue. In other words, a very expensive procedure with little chance of success. I have bronchiectasis, MAC and CF. Linda
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@sounder27 Other Terri here...this is stem cell "therapy" - completely unproven, unresearched, works seldom, is not covered by insurance (as it's not effective) and very costly