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Update On Treatment of MAC

MAC & Bronchiectasis | Last Active: Feb 12, 2022 | Replies (111)

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@ina

Hi, my dr put me on the big three and my body couldn't take them. I was sick as a dog! He is now suggesting Arikares. What I have read scares me! Has anyone had any experience with taking it? Thanks!

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Replies to "Hi, my dr put me on the big three and my body couldn't take them. I..."

My mother who has MAC was placed on Aricayse and could not tolerate it. Now her infectious disease doctor placed her on Amikacin 1/2 the dose , diluted and only 3x week. Done via nebulizer. He consulted with Jewish National Health in Denver about this. So far, so good! There are options. She also still takes Arthromycin and Ethambutol.

I have been on Arikayce for 2 months, barely tolerating it. Cough is sometimes out of control. Never had this issue before. Also on nebulizer with saline and albuterol. Wondering if anyone else has had problems tolerating Arikayce.