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Permanent SIBO due to removal of ileocecal valve

Digestive Health | Last Active: Apr 2 6:54am | Replies (191)
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@jackiegem

Hi Rachel,
I read your post and would like to know the Facebook group for people with our similar issues (I had my appendix, secum, illeocecal valve, and 13 inches of colon removed). I'm suffering daily digestive problems and my GI has done many tests plus an endoscopy. I'm hoping she will agree to prescribe xifaxan for me to try. This misery has got to stop!
Thanks,
Jackie

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Replies to "Hi Rachel, I read your post and would like to know the Facebook group for people..."
tiss | @tiss | Dec 13, 2021

Hi Jackie, sorry for your suffering. There are a couple of Facebook support groups that I am in. Both are private. The bigger one is called Total Colectomy Survivors-- Colectomy Support Group.
Has your dr done a methane or hydrogen SIBO breath test? Easy test. Non invasive. I feel your pain. It's not easy. ❤️

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