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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
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@tdrell

@jkiemen hope you are continuing to do well after the lung biopsy....not doing anything strenuous at work and taking care of yourself....was it under general anesthetic or conscious sedation? was it thru mouth or side of chest?? How long before results come back??
As far as nitrous oxide as a treatment....there were a few cases that responded well in Israel a few years ago....I recall Dr Daley from NJH told the audience at a NTM patient workshop....the next research was to be in Canada....he seemed sorta non enthusiastic when mentioning it....this was a few years ago though...the information just shared here is more up to date l believe...
tdrell

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Replies to "@jkiemen hope you are continuing to do well after the lung biopsy....not doing anything strenuous at..."
Jo Ann K | @jkiemen | Apr 24, 2019

@tdrell For the Lung Biopsy, I had IV sedation through the chest. I had to lay on my abdomen and they went through my back. I went to work the next day. The Nitric Oxide study in Canada was a 10 pt study. I don't know the result of it. I keep checking the web site and sending them emails for updates on the progress. The company is Ait-Pharm check https://www.centerwatch.com/clinical-trials/listings/159841/non-tuberculous-mycobacterial-pneumonia-inhaled-gaseous-nitric-oxide/

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Terri Martin, Volunteer Mentor | @windwalker | Apr 24, 2019

@tdrell and @jkiemen, If you Google Nitrous Oxide/mycobacterium/NIH.gov you can find info on this subject. I posted the link awhile ago, but will have to look for it again. NIH (National Institute of Health) did studies many years ago on treating mac with nitrous oxide. The study proved it does kill off mac, but the delivery system was not cost effective to use it at that time. One would have to spend four hours a day in a medical facility to receive the treatment. I forgot for how many days one would need to do that. Bottom line was, there was no money to be made. It will be interesting to see how an inhaled version of this will go. For as bad as our disease is, it sure is interesting to me to research it.

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