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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (9354)Comment receiving replies
@jo ann k good luck with biopsy.....and so far no bronchiectasis shows on my CAT scans,.....other stuff which is why l have follow up CAT scans based on Fleischner Society guidelines used by radiologists which really is for checking for Cancer ....over a ten year period no changes in the stuff (nodes and nodules )present....there is inflammation which they feel is from the reflux...l guess because l have never smoked there has been no mention of biopsies and the fact that there has been no enlargements in recent years ....l went to a Dr Claudia Altmann an ID doctor at Grafton Auorora once but went for second opinion at NJH and did not go back to her....again good luck with biopsy
tdrell aka terri
Replies to "@Jo ann k good luck with biopsy.....and so far no bronchiectasis shows on my CAT scans,.....other..."
@kiemen what is the name of the doctor at National Jewish Hospital? I am thinking about taking my wife out there for a checkup. I spoke with a doctor at Walter Reed Bethesda Naval Medical Center about a referral for my wife. It is my understanding they are the best in the Nation in the area of Microbacturieum Avium Complex (MAC)...
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@tdrell Thank-you so much. I am fighting the nodules thing. My MD told me "that's what your type does, it makes nodules". I just want to make sure it is not anything else first then see if the treatment needs to change. I should look into National Jewish at least for a consult and to be established since I expect this will be a lifelong situation I still am struggling to manage in my mind.