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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: 2 days ago | Replies (9354)
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@jkiemen

@mariierod123 I think that is the hardest part. "Being scared". I feel like I spend so much time being scared of what next. I pray for all of us that one day there will be a breakthrough in treatment. I am supposed to be contacted by a clinical trial that may be starting in the 4th quarter of this year. I am hoping the FDA sees this as an important condition to treat. I guess we have each other because only we can understand what the other is going through.

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Replies to "@mariierod123 I think that is the hardest part. "Being scared". I feel like I spend so..."
mariierod123 | @mariierod123 | Apr 19, 2019

Yes i agree did they tell u they are also checking for cancer i did a broc but they say they scaped area and shows no cancer but cant be for sure without the guided ct i think its all about money snd its very sad

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noahs | @noahs | Apr 19, 2019

Like your last line ... (good) we have each other bec only we can understand what the other is going through

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heathert | @heathert | Apr 19, 2019

@jkiemen yet the being scared is so awful and I think we have been thru it, and ongoing situation. Hopefully there will be a cure soooooon!

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