← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@tdrell

@jo ann k....l am from near Milwaukee in Wisconsin...,,,the Aurora system infectious disease dr was about to put me on the big three antibiotics after one culture of MAI taken on bronchoscopy.....l had already gone to NJH workshop on NTM in Denver....coincidently was visiting daughter in Denver when the workshop was being held. So I told the ID doctor from Aurora that l was getting second opinion.....lthink there are a few more in this group from Wisconsin...what did they do????
By the way....on the second day of the 2 week scheduled visit to NJH they told me l DID NOT HAVE the infection but my cough and the positive culture was due to
-we in Wisconsin are considered by ATS as hot spot for NTM....it is in soil water and sometimes air
- due to my GERD l had aspirated the MAI from stomach into lungs hence found on bronchoscopy....but no signs of it /bronchiestasis on CAT scan.
I am followed annually and now every two years to be thorough and l have other stuff they follow...tdrell aka terri

Jump to this post


Replies to "@jo ann k....l am from near Milwaukee in Wisconsin...,,,the Aurora system infectious disease dr was about..."

@tdrell I am also from near Milwaukee, Wisconsin. I see a Pulmonologist at Froedert but looking for ID doc. I just had my right middle lobe removed on Apr 8, as it was filled with MAC. Do you have a good Infectious Disease doc?

@tdrell I have never been good at getting any sputum up. I think I had one positive sputum of the probably 9 or more I submitted over the last several years . I could not produce any with mucinex and sputum induction. What has been cultured was from bronchoscopy and I had a biopsy in 2015. Did you have any changes on your CT other than bronchiectasis? I guess I have nodules and maybe granuloma. I am having a biopsy next week to see what is going on with the one area. Can you tell me who you see for Pulmonology? Was it Dr Buggy or Brummitt that you saw at Aurora?