@jo ann k....l am from near Milwaukee in Wisconsin...,,,the Aurora system infectious disease dr was about to put me on the big three antibiotics after one culture of MAI taken on bronchoscopy.....l had already gone to NJH workshop on NTM in Denver....coincidently was visiting daughter in Denver when the workshop was being held. So I told the ID doctor from Aurora that l was getting second opinion.....lthink there are a few more in this group from Wisconsin...what did they do????
By the way....on the second day of the 2 week scheduled visit to NJH they told me l DID NOT HAVE the infection but my cough and the positive culture was due to
-we in Wisconsin are considered by ATS as hot spot for NTM....it is in soil water and sometimes air
- due to my GERD l had aspirated the MAI from stomach into lungs hence found on bronchoscopy....but no signs of it /bronchiestasis on CAT scan.
I am followed annually and now every two years to be thorough and l have other stuff they follow...tdrell aka terri

I have the same problem. I live in western Illinois. The insurance company will let me go to Iowa City but not Mayos.

@jkiemen Hi Jo Ann, I had the same issue with my insurance. I did find a Dr at Mayo that I wanted to see (excluded from my ppo) and asked my primary care physician for a referral. Then called my insurance and told them the only Dr available on their list was not helpful and I needed a second opinion...It took a while but they made an exception. Problem was that they would not pay for tests done at the facility on the spot....I called the Dr office at Mayo and explained the situation when I made my apt. I asked what the Dr would most likely want to see in the way of tests and got my primary to write the script for a catscan. I had already had a bronchoscopy with a diagnosis of MAC. Just brought all of my paperwork with me and had the scan on disc. It was a roundabout way to get to Mayo but sure made me feel better and rest easier. I know that if I run into problems in the future, I will probably have to change my insurance to include the Dr at Mayo as I am most uncomfortable with the pulmonologist on my insurance. I am fortunate that my case is mild. At least my insurance was somewhat flexible. Good luck in finding a Dr to take care of you....If this doesn't work for you, I really believe that it is so important to trust the Dr that has direction over your well being and it might be worthwhile just to bite the bullet and go out of network. Wishing you the best. Kate