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@carol75

Hello group. I was diagnosed with PMR in June and started on 10 mg prednisone. Started getting all the signs GCA in August which prompted my primary care doctor to up my dose to 40 mg and referred me to rheumatologist and surgeon to do temporal biopsy which showed negative. Still all the signs temple sensitivity and irritation , hair loss in that area horrible pains going up the back of my head and through my shoulders. Due to those reasons rheumatologist suggested going on at Actemra which I have not been able to start yet. Breathing has become significantly difficult therefore having to go to the hospital with massive blood clots in my lungs. I’m wondering if all of us is related to the prednisone. Has anybody else experienced this?

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Replies to "Hello group. I was diagnosed with PMR in June and started on 10 mg prednisone. Started..."

@carol75. Hello, Carol. I've had GCA for 2 1/2 years. I don't believe Prednisone is the cause of the blood clots, pain, etc. It helps with those symptoms. I was on massive doses for 1 1/2 years and finally, in the care of a rheumatologist, I was put on Actemra injections once per week. Actemra is much easier on your body than Prednisone, and was developed specifically for GCA. No moon face or weight gain either! I hope you're able to have your Actemra injections soon. Please feel free to message me for any help or support you might want.
Warmly, Laurie