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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Can those of you who took Big 3 over a year, tell me if you had similar things as with my CT of this week. I had improvement last years CT then this week one spot better and one spot worse ( the original area). I don't know if it is forming scarring or just getting worse. Hence being scheduled for Biopsy for more cultures. It is too far down to reach with bronchoscopy.
I hope I get to the day when I can say, here is that last dose.
Replies to "Can those of you who took Big 3 over a year, tell me if you had..."
Hi jkiemen. I also took the big 3! I only did 6 months and my scans also showed some some better and some worse. I even had cavities in there. That’s 4 years ago and then I wasn’t being treated until last year. I also have pseudomonas and I am now being treated for that. I am now at at Mayo Clinic and my doctor is great with Mac so I have hope and I don’t always have the best report but I am looking forward to enjoying life whenever I have good days. Mac is still growing slowly in my lungs and I’ll need to treat soon. Hang in there! This is a long journey and with friends in this group it’s is encouraging. I wish you the best! Hugs to you Rita.
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Thats exactly what im being told they said it was gone now they saying i have a spot they cant reach and need to do a biospy we find this ver odd what are you doimg about it?