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@becky33

Today is a big day in my life!!! I take my last does of 9,300 mg of antibiotics a wk for 27 months!!!!!!!!! Can't wait to see what "normal" feels like without all these antibiotics in me. It took 15 months before I got a negative sputum test back and my Dr Adam Anderson at Washington University, St. Louis, Mo wanted me to take the meds for 1 yr after the first negative sputum test for MAI. This journey has been a looooooooong very loooooooong one and not for sure when it even started because I've felt so bad for so long before I was diagnosed with MAI. I had been treated for asthma/COPD/lung infection etc etc etc for over 10 yrs before I was properly diagnosed. Was very lucky tho because during all the testing being done to find out why my lungs were infected all the time a tumor was found on my kidney so had to have that removed and also during testing discovered that I was among the 5% of people who do not respond to acid reflux meds so also had to have a Nissan Fundoplication operation to correct the acid reflux. Thought that would correct all the infection and coughing but didn't so still more testing. In one 12 mo. period I was on antibiotics and steroids 19 times!!!! I would do OK while on the meds but within 3 or 4 days being off of them I'd start coughing and being infected again. Finally after so many dr's I lost track I was sent to the right one who tested me for MAI and now FINALLY hopefully my MAI journey is ending as of tonight when I take the last dose of the big 3. I can now breathe, I can ride my bike, I can dance and I can walk 2 to 3 miles with no problems and I'm 75 yrs old!!!! So please pray that there are no hidden bugs hiding in my lungs just waiting for the antibiotics to cease so they can start growing again. I feel blessed and I feel good!!!

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Replies to "Today is a big day in my life!!! I take my last does of 9,300 mg..."

Also want to add that Dr. Anderson is having a CAT scan of my lungs and a lung function test ran next wk so he will have a guide line to begin my journey without MAI.

@becky33 You've been through so much! Congratulations on reaching this point of freedom from meds! Wishing you continued good health going forward! Olivia in California

@becky33wishing you all the best! Congratulations on your perseverance!

@becky33 Thanks so much for sharing!! Your journey and progress in this battle are an inspiration. Wishing you a clear scan and healthy days from here on!!!
Blessings, Yaggi01 (an MAI sufferer also on the Big 3 for 20 months now 😏)

That’s wonderful news! Prayers for a great journey 🙂

@becky33 That is really wonderful Becky. And I agree you are a real inspiration to us all! (Please now do everything you can to improve your immune system. After we finish the antibiotics, the research shows there is increased risk for up to 2 years. So I suggest taking a good broad spectrum probiotoc and inulin powder as a prebiotic every day -- you can order these online. And take up to 4000 iu per day of vitamin D3. Both of these help the innate immune system of older people). Hugs and the best of luck, Annie

YAY!!!