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Benign or Malignant IPMN? What to do next?

Pancreatic Cancer | Last Active: Apr 8, 2023 | Replies (79)

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@hopeful33250

Hello @mariouk

I was wondering how you are doing. Have you had any other MRIs yet? How are you feeling?

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Replies to "Hello @mariouk I was wondering how you are doing. Have you had any other MRIs yet?..."

Hi all

Interesting enough I did not get a notification about the update.

I am really well thank you and I do hope others are as well.

Overall not much of an update but I have been classified as the lowest of the low risk due to all my tests.

I have a MRCP in July that it came back with zero changes and I did request for another EUS\FNA due to the fact the FNA was not completed last time.

The FNA results were very basic but overall all my results were really positive apart from the size. Interesting enough in the UK they do not test the cysts genes/dna as when I was asked to share KRAS and GNAS I was told nope.

Anyway I have been now told to come back annually for a MRCP and take it from there. One very interesting comment from my surgeon was that he said the next 5 years will be critical as that timeline will define the next steps. Interesting indeed and all I can do is enjoy life to the max , keep healthy and positive and barely think of the IPMNs as let’s face it not much I can do.

Thank you for asking