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Knowledge is power: Add your helpful neuropathy resouces and links
If there was one suggestion I could make to help a person suffering from neuropathy it would be learn as much as you can about your condition. The more you know, the better questions you can ask of your doctors and health care team. Hopefully, helping you find a treatment plan that provides relief for your symptoms.
Early in my journey I was fortunate enough to find a support group that was not too far away, The Minnesota Neuropathy Association. Sadly, the group had to disband and members had to look for support elsewhere. Being able to connect with other people with similar symptoms and conditions was what got me to learn more about neuropathy and what others found helpful.
The reason I started this discussion was to have a place where members, including myself can share information about neuropathy -- What is it, how is it diagnosed, what causes it, what options are available for treatment, what's the prognosis, and on and on...
One of my early finds thanks to the Minnesota Neuropathy Association was a series of short easy to understand videos by Matthew B. Jensen, Assistant Professor of Neurology, University of Wisconsin — Introduction to Neurology: Level 1 that can give you a better understanding of the different conditions:
— https://www.youtube.com/channel/UCJaXGRxxjnF2mvLiOFmmHLQ
Let's learn together and keep learning...knowledge is power! Have you found any articles that turned on the lights for you?
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Hi Rick @sam31, Thank you for the private message and the following PN presentation. I thought I would start a new discussion so that we can all share neuropathy information that we have found helpful on our journey. I haven't had a chance to watch it yet but I'm planning to add it to my to do list for this week.
A Practical Approach to Peripheral Neuropathy & the Role of EMG 10/11/17
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6 ReactionsGreat idea John. Keep it for factual presentations and I think you'll really provide a service to the members.
Rick
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1 ReactionGreat information!
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1 ReactionGreat stuff here, John. Thanks.
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1 ReactionI watched and listened, very encouraging and enlightening, surely worth the time. Thanks for posting it.
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2 ReactionsI needed some basic info and seems like there are others asking questions so I thought this would be a helpful thread to bump. I hope that is allowed.
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3 ReactionsAnother good source for neuropathy videos is the Foundation for Peripheral Neuropathy's YouTube channel.
https://www.youtube.com/@foundationforperipheralneu4122/videos
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6 ReactionsThanks John!
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1 ReactionHello, all!
Two thumbs up for "Knowledge is power!" (I'd put more thumbs up if I had them.) The onset of my PN symptoms was several years ago, although it wasn't until only last fall that my PN was finally diagnosed (predominantly sensory-acquired axonal peripheral neuropathy – quite a mouthful!). For several weeks, I moped around, certain there was little to nothing I could do for myself. One day, I said to myself, "Snap out of it, Ray!" and put together a 3-ring notebook in which I collect all the best* PN information I find, as well as make notes of questions to ask my doctors. (*I say "best," because there's so much misinformation out there, especially online; learning which sources are authoritative and helpful is absolutely critical.) Maintaining that binder not only keeps my spirits up but also is a great reminder of my own role in taking good care of my health. So again, two thumbs up for "Knowledge is power!"
Ray (@ray666)
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9 ReactionsThank you, John, this was extremely helpful.
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