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Learn About NETs and monthly meetings

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:30pm | Replies (96)

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@hopeful33250

Hsllo @mfgw

This Facebook Live event should be helpful to you. If you are comfortable sharing more, is this a new diagnosis for you or have you previously had carcinoids?

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Replies to "Hsllo @mfgw This Facebook Live event should be helpful to you. If you are comfortable sharing..."

My first carcinoid was diagnosed in 2016. However, my first growth was removed in 1994, then again in 2008. I had 4 NETS removed this year, and another stage 2 taking up residence in my duodenum. There is the potential there is still something hiding in my stomach. Those contrasts like to show and tell. My 2 Chromogranin A's have been 4388, and the last taken was last week and it was 5525.

So the thought that I have NETs are scary. The cancer that keeps on giving.