I hope I'm not butting into a conversation that I shouldn't. I too, have MAC. This is my second go-round. I was first diagnosed in June of 2017. I took the standard 3 antibiotics for a period of 12 months and was told I was cured. When I went in for my yearly check up, my Dr. ordered a CT and it showed up in the scan. I had a Alveola Lavage and will see my dr. on the 20th for formal diagnosis. From what I'm reading, it doesn't sound very promising. This second time is so different than from the first. I can really feel it this time. I'm so sorry you all are having to go thru this. If anyone has any suggestions, I would love to hear them.
Again, this is my first attempt to join this group and I'm not sure of how to get started, and I'm sorry if I shouldn't have responded here.
ktkarenst

@windwalker Yes, Terri that is so true about MAC and transplants and anti rejection drugs. Before I retired I had a little girl in my class with two transplants (kidney and liver). Most of us on this site are lucky to be able to use hand sanitizer before we eat at a restaurant. Transplant patients can’t use it as it can damage the transplants apparently. That was new info for me! The doctors at Boston Children’s Hospital told the little girl’s mom that so her IA stopped having her use it.