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@warriorsue333

I am grateful for your input. I'm sorry you struggle with it to. Sending you prayers, love, and healing. The prednisone has caused moon face, severe bruising, an insatiable appetite, weight gain, bloating, and is destroying her bones to name a few. Bone density was really bad which is why he's discontinued it, plus she doesn't want to take it anymore. And yes, tapered.
I will ask her rheumatologist if he's tested for GCA. The only symptom she has is newer eye issues. Her shoulders are really bad as well as hips and lower back, which they've told her is from compression fractures.
I've been researching infrared treatment/infrared sauna blankets. Glad you mentioned the heating pad and that it's helping. Have you tried accupuncture?
She practically lives on acetaminophen as she cannot take n-saids. It doesn't help.I've also started her on high quality turmeric which, sadly, doesn't seem to be helping yet. She's also never taken care of herself physically or mentally and has led a very unfulfilling life. Her diet is atrocious. So I feel this has a lot to do with it.
I will dive into researchibg saffron. Thank you for sharing. Blessings to you!

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Replies to "I am grateful for your input. I'm sorry you struggle with it to. Sending you prayers,..."

Hi @warriorsue333 so sorry to hear about all your mom's suffering. I experienced the bad effects of prdenisone on the high dosage, 40 mg. Around 10 mg, they started to go away. Eye problems can indicate Giant Cell Arteritis, which can lead to blindness or stroke. 30% of people with PMR develop GCA. You should let the doctor know about those symptoms if you haven't, but you seem to have everything covered. I did read a summary of a paper in the Lancet Rheumatologist about a drug called tocilizumab possibly replacing prednisone for GCA, but it is in the early stages of being studied. I never did try accupuncture. I ate a plant based diet, took supplements, exercised, but still wound up with PMR and GCA. There are genetic markers. A new study (Dr. Andrew Weill summarized) found that omega 3 fatty acids

I’m on my 3rd bout of PMR, slowly decreasing prednisone. I had an interesting experience with accupuncture between 2nd and 3rd bouts when I thought I was in remission, but having lots of knee pain/leg pain. I signed up for 3 sessions and after each I would have unusual pain the next day. My acupuncturist had no answers, but in another conversation said that accupuncture stimulates the immune system so can make autoimmune conditions worse. I was diagnosed with PMR 4 months later. I realized later that the PMR was there and the accupuncture did not help, actually made it worse. So would not suggest accupuncture for PMR, though I have used it for different things