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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)

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@benacnes

Howdy. I have a similar story. February of 2019 I had a sudden and intense onset of abdominal pain. Sharp stabbing pain through my back and around my right side. Difficult to describe the pain. Sharp stabbing, electrical shock, burning. 2 trips to the ER in a 24 hour period followed by many more trips a few times a week. First year of imaging and cameras up there and down here and everything looked normal. CT's, MRI's, bone scan, ultrasound, x rays and so on showed normal. Then I received the, "It's all in your head", diagnosis. Eventually, after a great deal of persistence, I was positively diagnosed with ACNES. Trigger point injections and cortisol steroids provided Short term relief of between 1 to 4 hours if it worked. Meds taken include hydro morphone, Cymbalta, pregabalin and codine to name a few. More side effects than relief. Fast forward 18 months to pulsed radio frequency ablation. When just the right spot is done I receive substantial relief. The meds are effective and I am able to function. Current medications are pregabalin, Cymbalta, codine(T4's) and THC/CBD. In Canada THC/CBD is legal. I use it in the form of a balanced blend oil. This combo has a significant impact on my mental abilities but helps enough with the pain that I can function enough to get cows fed. I am a 45 year old man and this pain brings me to my knees in tears. I have been trying to find a doctor in Canada to perform a neurectomy with zero success. I would like to hear from people that have had this procedure.

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Replies to "Howdy. I have a similar story. February of 2019 I had a sudden and intense onset..."

Hello Ben, I suffered from the horrible pain of ACNES for 9 months before I was fortunate enough to find a great hernia surgeon at St Joseph's Medical Center in Phoenix. Dr Gillespie performed Robotic Laparoscopic surgery (29 minutes of surgery) cutting my T8, T9 and T10 abdominal nerves. I left the hospital at 4pm same day totally pain free - cured. After the surgery I came in contact with another sufferer on Mayo Connect and he is have the identical surgery next week by Dr Gillespie.