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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@jasmine321 My wife was on the same drugs and she could not tolerate them. All total she was taking Rifampin 300mg x 2; Ethambutol 400mg x 4; and Azithromycin 500mg x 1 three times per week Tuesday, Wednesday and Friday. She was on them for approximately 6 months, These drugs were in addition to the antirejection med she is taking. She loss lots of weight and stays in bed more than she was out. She gave it up. It seems to me, no matter how many drugs you take, there isn't a cure. 18 months is a long time to take all those drugs and not have a definite outcome. Blessing to all concerned. I have made it my commitment to pray for all of you daily...
Replies to "@jasmine321 My wife was on the same drugs and she could not tolerate them. All total..."
@spencersok Thank you for the prayers. My pulmonologist suggested surgery (lobectomy) if medical management will not treat the Infection.
@jasmine321 and @spencersok, We can all commiserate with Spencersok's wife. But, I want to remind everybody so that you all do NOT get discouraged; these medications do help some people, and also, his wife has the added challenge of being on antirejection drugs. It is not uncommon for transplantees to get mac because the antirejection meds lowers your immune system a great deal. Spencersok, please tell your wife that I am praying for her also, and that she has this Connect community pulling for her. I bet it hasn't been easy for you either as her caregiver. It is tough to watch someone you love struggle so hard with their health. Hugs to you both. X
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@spencersok That is very kind of you to pray for us all. Thank you for that thoughtful gesture.