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@smeegle

I have an appt scheduled in early January but have requested an earlier appt. I'm on the wait list for any cancellations. Send that it's more of a priority to me than my Nephrologist. The local labs I use all appear to be using the old GFR formula so that's a bit of a grey area for me. I looked back and my just the GFRs we're 22, 17 & 24. Six months ago was averaging mid to upper 30s. I have one person (F38) hasn't been vetted) who had offered to be a live donor. I just cannot imagine asking her if she still would consider it as this is one of the ultimate gifts of life and a sacrifice on the donor's part not to be taken lightly. She is a long time friend so we may not even match. I think she has an auto immune disorder (lupus or MS... They keep flip flopping on the dx) but otherwise healthy. Never drank or did drugs of any type. Most of the time I feel that getting a transplant is just a pipe dream. My quality of life is pretty dismal =\> 75% of the time. I remain hopeful but not very optimistic.

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Replies to "I have an appt scheduled in early January but have requested an earlier appt. I'm on..."

@smeegle I hope you are able to get in under a cancellation. As you have alluded to, it is a big decision to offer to be a donor, or to ask someone to step up and be a candidate to donate. You may be relieved and surprised to hear she is still willing to be considered, and vetted, and is just waiting for you to bring the subject up again. It takes several months of exams, testing, and evaluations on both the donor and recipient's part; it is not a quick thing.

I understand the feelings about quality of life, also. Eating healthily, getting exercise when the energy is there, writing out my thoughts, doing things that are positive. These I do have control over. I know a transplant is not in my future at any point, and that was hard to come to grips with. So it is up to me to make the best of the situation as it is.

What will you do for yourself today?
Ginger