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@america

Hi Sueinmn! Thanks! I do speak with the nurse from time to time. I feel being closer would help but for now I’ll do what I need to. This disease is lot more complicated than I thought.. this group has helped me in many many ways. But it’s scary having one vocal cord, Sjogrens, RA, restless leg syndrome and so much pain daily. I do get discouraged from time to time. I am thinking about moving because in the Tampa area I think it’s infested with Mac. I would love any thoughts on this. Thanks again Rita.

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Replies to "Hi Sueinmn! Thanks! I do speak with the nurse from time to time. I feel being..."

@america Hi Rita,
I would think very hard about moving to avoid MAC (or any other single germ) - I have now learned that MAC is everywhere, even in our home water supplies, etc. I don't know if anyone could give you a definitive answer on where to go to completely escape it.
Most of us on this group have multiple health issues, the trick lies in figuring out how to live as well as possible without getting sick(er.) I personally focus on what I CAN DO, even if I cannot do it every day, and on staying as strong as possible through good diet, supplements, exercise and attitude. That can be pretty hard on bad days, then I try to give myself a pep talk, or talk to a friend or family member who will buoy me up. Good luck with your treatment for MAC, if the side effects don't subside, or grow worse, get in touch with your doc. Sue

@america, and @sueinmn I attended the World NTM conference in D.C. a few years ago. While there, I learned there are some geographic differences for mac. There are definite 'hot-spots' for MAC in this country. Some states have a far greater incidence of it than others. Unfortunately, Florida is one of them, coming in second to Wisconsin. California, Arizona, New Hampshire, & Hawaii. I got mine when I lived in Arizona. I have been mentoring this site for several years now, and I can tell you; the majority of the folks on here with mac live in Wis and Fl. Yes, mac is everywhere, but it is in higher doses in some regions.