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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Hi, thanks i known the bacterias are in environmental but it is special then my mother got the sames of me after one year diagnosis me. She have 80 years old and she don't want the traitements because she see me how i feel badly somes times...but she will meet a doctor who will help her to change the idea...i hope...we will see...
Thanks again.
Replies to "Hi, thanks i known the bacterias are in environmental but it is special then my mother..."
@lisesoleil Hi there. You can click on my picture and read about my treatment plan. There are other inhalable medications available now also. Be sure that both you and your mom have a suseptibility test done to see what will work on your particular strain of mac.
@lisesoleil Hi, Lise - My husband & I both have bronchiectasis from different causes, but only I have contracted MAC. He got a different infection. Our daughter also has bronchectasis, but currently no lung infection.
We are a family with 3 generations that have bronchiectasis - our University will be studying my daughter, brother, husband and me to see if they can identify any genetic link.They say it is unusual, but not totally unheard of.
I am tolerating the 3 antibiotics, but when my mother had MAC in her 80's she was unable to take any of them. The infection is very slow to grow in most people, so hers was not treated, and it did not cause her death a few years later - it was from a different illness.
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@lisesoleil I could not take the meds. Tried for 3 months and lost 40 lbs. That was 4 years ago.
so far so good!
Jan