← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@ajf

I am still dealing with trial meds the latest being hydroxychloraquine, it seems that nothing besides prednisone or mthylprednisolone at a level of at least 8 to 10 mgs a day works. they tried with methotrexate, leflunimide and now this. the pain when i reduce the steroids is so bad its insane. the insomnia that goes along with it is not helping either. am taking 8mg methyprednisolone with 400mg hydroxychloraquine but it seems i was doing better on just the methylprednisolone. i dont know what to think.

Jump to this post


Replies to "I am still dealing with trial meds the latest being hydroxychloraquine, it seems that nothing besides..."

Since you seem to have been jumping thru hoops already, I took all of the above as well, the glitch is systemic inflammation attacks with a mind of its own. It was why I researched intestinal parasites. With the help of holistic massage therapists, it irraticated a good percent of the “bugs”. This helped immensely with mild IBS and so many other symptoms. Mental stability is a large slice of the pie. Meditation, yoga, mindfullnes, anything to get out of your own way. Good luck

I am taking 12 mg methylprednisolone daily and 1cc methotresate weekly. I was troubled by insomnia so my Integrated Medicine doctor recommended taking PharmaGABA - 250 by THORNE. My rheumatologist agreed. It has helped me with sleep. I take 1 at bedtime and 1 more if I wake up and cannot go back to sleep. She has told me I can take up to 3 a day. It somehow calms down the brain activity caused by the methylprednisolone. I hope you find some help.

I have also been put on Hydroxychloroquine to help with petering down the Prednisone. It did help in getting me down to 4 mgs. Prednisone, but I noticed that the swelling in my legs increased. Long story short, after seeing numerous doctors about the swelling it was discovered that if I cut back on the hydroxychloroquine the swelling went down considerably. I guess each person reacts differently and you have to judge what is best for you. Good luck.