@hsletter Hi Helen, I just read your post. I do not post that often myself, but sadly I do know that the founder of this site, @katemn, has passed away, I think it was last year. I am one of those patients with MaIC that has known I have had it for a least 8 maybe 10 years. I have managed up till now to stay very active, have never had pneumonia, but bronchiectasis is getting worse, and I have lots of mucous production and coughing. I was due to start the big 3 mid Jan, but had to once again postpone starting because of a serious shoulder issue that my require surgery. (I have bilateral shoulder replacements and now one of them has failed and seized up, and I may reguire a revision). I just could not face going through major surgery with my system run down with 3 toxic antibiotics, and opening me up to being more susceptible to surgical infection in the joint.
I will start the journey of the big 3 as soon as I get this shoulder sorted out, because I like you are keen to try to get rid of this nasty ongoing thing. My biggest fear is the fear that the big 3 are so toxic and may not even work, and once on, we are on these and other antibiotics for life. Good luck with your journey. It seems like there are more and more of us, 65 plus females with Bronchiectasis and Maic. Keep posting, take care. Jo.