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Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)
Kidney & Bladder | Last Active: Jun 1 4:57am | Replies (216)Comment receiving replies
Tell me when just watching a patient's organ's decline became the treatment of choice. That seems to be it for nephrologists. We live in the cyber age. People pay billions for a ride to the edge of space. Those with CKD wait and watch until they reach the edge of death. Something very wrong with this picture. All kinds of gadgets invented to help heart function. What about the kidneys. CKD is not some new, exotic disease. Seems to me the nephrology isn't a very creative field.Needs to be a concerted effort to stop the disease in its tracks. Also, nephrologists don't seem to pay much attention until you get to stage 3. At least that's what happened with me. Good luck to us all.
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You are so correct! It makes you aware how unimportant your survival is if somehow UNOS gets there act together. The policies when having an underlying condition for example type1 juvenile diabetic for 50 years , stage 5 kidney failure . EGFR new policy adds 4 or more numbers that of course is over 20. EGFR # to me is the formula used last 50 years . Local doctors and my transplant coordinator weren’t aware of new formula. Dialysis isn’t an option. I need a kidney because of for 50 years type1 juvenile diabetic. My EGFR before policy change way below 20. Transplant center implied that numbers weren’t considered because the centers have to be within their evaluation. Hospital numbers. Love some input . Now I’m having severe GI problems weight very low. Longer I wait my organs work overtime and seem to be stressing other major organs . Thank you