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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)
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@janovr

@windwalker ... Wanted you to know Barb, Eva and I met for lunch today near Orlando. It was great to meet face to face with other MAC/Bronc
patients. If you live near Leesburg, Clermont , Orlando contact me @janovr. We plan to meet again in several months for lunch
and share new ideas. Jan

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Replies to "@windwalker ... Wanted you to know Barb, Eva and I met for lunch today near Orlando...."
Terri Martin, Volunteer Mentor | @windwalker | Feb 28, 2019

@janovr What is Eva's @name? I don't know which member she is. Thnx!

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Helen L/Orlando | @hsletter | Mar 2, 2019

@janovr Hello Jan. Where do you, Barb and Eva live in Central Florida? I am in Longwood and would like to meet you all! In meantime, I notice people are referencing various acronyms for our disease: MAC, NTM, MAI, MaIC, etc. I must do more research. My IDC doc, Jennifer Hitt in Altamonte, is calling what I have NTM (Nontuberculous Mycobacterial Lung Disease), which I guess is the general term? btw, they treat 45 patients with this in that office alone! Had no idea it was so prevalent!
I just ordered the Broncolin cough syrup with Propolis, thank you for that! Which of the cough drops do you recommend?

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