← Return to Neuropathy symptoms are worse when I sit or lay down: Anyone else?

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@crustycat

Very sorry to hear of this @preknight. Neuropathy is a difficult issue to treat. I was diagnosed T2D 20 years ago and regrettably did not take it serious (not saying this is your case). I wish I had managed my diet, specifically carb intake, to mitigate some of the neuropathic symptoms. I sympathize with your situation and encourage you to continue working with your docs to improve your quality of life. I did not realize that I had small fiber neuropathy and the neurologist I was seeing had never mentioned it. I kept pressing on with my GP and he got me an appointment with a neurologist out of town. Within a few minutes of talking, she said it sounded like SFN and scheduled a skin biopsy which confirmed the diagnosis. My point is this: Never give up. Keep pressing forward to make sure you are getting the care you need. Doctors are well meaning but are just people and subject to the imperfections of being "human". You are far from alone and I wish you the best in your quest.

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Replies to "Very sorry to hear of this @preknight. Neuropathy is a difficult issue to treat. I was..."

Thank you @crustycat . I visit my neurologist every few months so he can monitor my symptoms. It is slowly progressing. I use my elliptical 4 times per week just to keep going. Only using a cane to keep from falling. Living one day at a time. I am only 76 years old and plan on many more years.