Hi the infectious disease doctor i just saw this week gave me the name of the doctor at duke who specializes in Mac. She suggested going there for a second opinion. Currently i am researching and learning which she recommended. I have an appt with her in January to discuss my situation.
I hope i get an appt at Duke before going back to the infectious doctor. I am like you i want to go to the best or at least a hospital that sees many cases and has more data. I just spoke to the office yesterday and i need a referral to get an appt. I have to wait until Monday to call the inf disease dr to get my referral.
His name dr jason stout at duke
Would like to hear what the doctor tells you on the 8th about treatments. I know we are all different situations. Right now i have no idea what to do. Hope this helps. Miriam