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@whr

It's been two years since my mastectomy and had I just had my first mammogram, it was clear, and I am so grateful. I took Arimidex for 18 months and have been off of it for eight months due to severe side effects. I had a PET scan after my surgery and it was clear. At that point I was told that chemo was "preventative" as was radiation. Then the pandemic hit and I was stranded away from home for three months. When I got back I met with the oncologist and said I would continue with the Arimidex but no chemo or radiation, I am 76. It was the right decision for me as my quality of life is more important to me than the number of years. I knew what the side effects would be with both options and that I wouldn't tolerate it well. Life doesn't come with guarantees and neither do the treatment choices. After weighing the options and considering that it seems everyone is "treated" the same, for me I made the right choice. Question everything, do your research and go with what you decide is best for you. My hormone levels weren't checked before I started the Arimidex or during the treatment. When I asked to have them checked they were lower than what is normal for my age and have only gone up slightly in eight months. I was told the test is accurate, so I wonder why it isn't done before treatment is started. At any rate, I am going to try to enjoy each day and enjoy my good health, and deal with the Fear of Recurrence that someone mentioned is an actual "condition". The oncologist said the first two years after a mastectomy has the highest risk of recurrence, so far so good. Now I just have to deal with the osteoporosis left behind from the meds.

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Replies to "It's been two years since my mastectomy and had I just had my first mammogram, it..."

Recurrence and spread are two different things. I have read that with hormonal cancers risk continues to go up even after 5 years. With estrogen negative cancers, if you make it 5 years, your risk is low thereafter. That is what I read but cannot cite right now.