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Has anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Dec 21, 2025 | Replies (29)Comment receiving replies
@sunshine80 Oh that's brilliant I'm in Edinburgh my consultant said he can remove it but my right side will compensate for it not sure what that meant how bad were all your symptoms they've said that my balance canals are eroded and I've not to go back until march as they want to do another MRI and check my kidneys for VHL
Replies to "@sunshine80 Oh that's brilliant I'm in Edinburgh my consultant said he can remove it but my..."
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I'm in the United States! Rochester Mg is where I had my surgery! I Have partial facial paralysis and balance is damaged but with OR I am walking with a cane. They got most of the tumor it is a slow recovery but I'm 80 years old!! Good luck to you!