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Member Neuropathy Journey Stories: What's Yours?

Neuropathy | Last Active: May 2 1:08pm | Replies (552)
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@drolker

I also saw a doctor at JOHNS Hopkins Hospital for evaluation for neuropathy. He had no answers for me either.I also have Erythromelagia, and there is no treatment or cure for that either. The dramatic swings in outdoor furniture or indoor temperature make my feet turn fire engines red get very hot and swollen. I’m taking Gabapentin, but if the dose is increased it causes fluid retention and my feet swell more. I also use Rhofade cream on my feet up to 4 x day. It helps a little temporarily.

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Replies to "I also saw a doctor at JOHNS Hopkins Hospital for evaluation for neuropathy. He had no..."
raebaby | @raebaby | Dec 4, 2021

I thought I had erythromelalgia for 20 years. I saw many doctors and I belonged to an on line support site . Finally, I read about chilblains and taking Nephedipine for it and it ended the chilblains with the first pill .I am fine to this day, as long as I take it.

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