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Want to hear from others who have Stage 4 Chronic Kidney Disease (CKD)

Kidney & Bladder | Last Active: Jun 1 4:57am | Replies (216)
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@gingerw

@smeegle Welcome to Mayo Clinic Connect! I am away from my home base right now, but wanted to let you know that once you drop to 20% function, you can start getting listed for transplant. There are also people who are able to find a living donor and have a preemptive transplant, without ever going on dialysis. I will answer more completely tomorrow!
Ginger

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cathyherman | @cathyherman | Dec 3, 2021

I would like to know how to get a Preemptive transplant when UNOS doesn’t make adjustments. Have Type 1 for 47 yrs. At stage 4 Kidney failure, GFR was below 20 for a yr. then was 23 and not listed. Also have Enzyme Pancreatic Deficiency and on CREON. Stomach has gone crazy.

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