← Return to Has anyone else been diagnosed with an endolymphatic sac tumor?

Discussion

Has anyone else been diagnosed with an endolymphatic sac tumor?

Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)
Comment receiving replies
@sunshine80

Hi yes I had a very successful Eat removed in Rochester 3 months ago! Doing very in slow recovery!

Jump to this post

Replies to "Hi yes I had a very successful Eat removed in Rochester 3 months ago! Doing very..."
sunshine80 | @sunshine80 | Dec 2, 2021

EST not eat!

VIEW AND REPLY
jodocybb51 | @jodocybb51 | Apr 27, 2022

I was just diagnosed in January with EST. I have had a cat scan and and mri. The tumor is small and slow growing. He thinks I should wait and have another mri to see if there has been any changes. The next mri is scheduled for June 29th. He said surgery is risky although at some point it has to come out. But there is so many unknowns. I don’t know what to do. Can you share your experience from diagnosis to surgery?
Thank you.

VIEW AND REPLY