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Does more Rituxan make a difference?

Autoimmune Diseases | Last Active: Nov 4 10:08am | Replies (30)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@jlk1323 I had 4 rounds of rituxan for an autoimmune inflammation 0f my brain. I felt like a new person after the 1st 2 rounds ( over 12 months), but the 3rd and 4th rounds didn’t help at all. Some people react positively to the drug, others not. I then switched to cytoxan, which was difficult but it was only 8 months. Every single person is so different! I felt so much better after the 2 rounds of rituxan, that we went ahead with our trip to Europe. Pre-Covid, of course!
Your doctor may be non-committal because he /she wants to see how you tolerate the drug and how well it works for you. It would be well worth another chat with him/her.
My brother=in=law sent these articles to me. (He’s a pharmacologist/toxicologist). This article compares rituxan to oral drugs, but it does have good information
https://www.iodine.com/drug/rituxan/alternatives
Are you seeing a rheumatologist for treatment?

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Replies to "@jlk1323 I had 4 rounds of rituxan for an autoimmune inflammation 0f my brain. I felt..."

@becsbuddy hello may I ask how are you diagnosed with the brain inflammation I am trying to see a neurologist to see if there are any issues since I have major organ involvement from the lupus.