Hello Everyone, I encountered a new problem with my husband during our Thanksgiving travel. His two strokes that occurred prior to his Parkinsonism/LBD diagnosis had an impact on his vision. The doctors identified "left side neglect" as one of his vision issues. With his LBD, he has hallucinations at times. I am never sure exactly what he is seeing. So, as we traveled home after Thanksgiving, I found myself driving through a heavy rainstorm on a very dark night. We were on a freeway that had "patches" of construction where the lane marking lines were hard to see. I was doing the best I could, and was staying in my lane, but my husband kept giving me directions to "help" me. His directions were not helpful, and in fact they were quite confusing. I tried to ignore him, while attempting to keep him calm. I reassured him the best that I could, while paying strict attention in the difficult driving conditions. I even tried to give him a "job" such as reading the road signs to me.
All of a sudden, it felt like my steering wheel was hung up on something. I couldn't easily turn the wheel to make the minor adjustments I needed to make as the puddles of water pulled at the car. Fortunately, I realized rather quickly that there was nothing wrong with our vehicle, but rather my sweet husband had decided to grab the steering wheel and turn it the way HE thought I should go. This was a new challenge to deal with. I got him to let go, but honestly, I was scared and a bit mad! I understand how frightened he must have felt to feel he had to help me steer the car. However, he has no ability to reason anymore and he doesn't understand how his action could have caused us to have an accident.
Some in his family have suggested that now he can only ride in the backseat like a child. However, I know he would be very unhappy if I insisted he ride there. I respect and love my husband, and I try to react to situations in a way that maintains his dignity. I am going to diligently try to avoid night driving, as that seems to be the most disturbing time for him... and me. Any suggestions as to other remedies for this situation? Surely, I am not the only one who has experienced this kind of behavior. Thank you.
Oh my @hbjuniperflat that must have been distressing and scary for you. I hope you saw the helpful suggestions from @teacher502 and @providence1960.
I hope night time driving is relatively easy to avoid for you both.
Providence, I found it interesting that your mom actually found it to be a relief to be in the back seat as it relieved her of the pressure or stress of watching the road. Juniper, that might be worth a conversation with your husband about offering the backseat option. This may be best approached if you have others with you so that it's not banning him to the backseat alone.
I'm grasping at straws here, but I wonder if there is something else that you could use to occupy him while you're driving? Some of these things may not work depending on his state of mind at the time or the length of the drive, but here are some thoughts I had:
- Ask him to read the highway signs or street signs
- Play "I Spy"
- Read license plates
- Ask him to watch out for particular milestones or sights to "help" you navigate
What might help focus his mind on something other than co-driving?