Hi retired 123. My story is very similar to yours, but I developed this about seven years ago, so am now further ahead in the disability. Walking is both difficult and exhausting, and now it has spread to my hands and arms. I send loads of emails each day, both to keep in contact with friends, but also, to keep my fingers moving. Loss of feeling and icy coldness are always present, including the tightness in ankles and feet. I also take supplements, but do not take any drugs as I seemed to take them on board very strongly and felt like a robot all day. I get unpleasant sensations rather than pain, and do find sleeping very difficult. I also exercise, and have a wonderful mobility scooter so that I can take our dog for walks and enjoy the fresh air, good for the soul. Love your alternate to medication - chocolate and chips!!! It is a most frustrating illness, and like you, I had to stop driving. However, I have a lovely daughter in law who is battling an aggressive cancer, and is so brave and positive, I feel I have nothing to complain about. We don't die from this do we - well, not for a long time anyway, and I think my age will be the deciding factor on that one! All good wishes to you and I do find reading other people's problems and thoughts very helpful, thank you.