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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "I have had this for four years, now coughing up blood? Is this common in alpha..."
@rlrobi2 I also coughed up blood before my initial diagnosis of bronchiectasis and MAC. There was a LOT of blood and it continued to come out throughout the night in the ER. But it did stop the next morning when I was released. I don't have alpha one (don't know what that is) but did have MAC/MAI. From what I have read about this type if infection, some people never cough up blood and some do. My pulmonologist confirms my findings. The amount of blood can vary from person to person. After the first incident over 4 years ago, it happened for the second time shortly after but there was only a trace of blood in the mucus that I spit out. Since then, no blood at all. There is no need to panic. It is the result of the infection in your lungs. Like @unicorn said, you only need to do something if there is large quantity. But if you are concerned, I would suggest make an appointment and get more information and assurance from your doctor.
@rirobi2 I cough up blood now and then, the first time lots came out and I ran to emergency. They really cant do anything unless it wont stop, then they will do intervention therapy to cauterize the broken vein in lung with a lazer. I have bled 4 or 5 times, but dont go to hospital, it always stops. I stand over the sink and get it out. However one has to keep clearing the airways before the blood clots, that is the danger. So learn to hawk up and spit really well. I had 2 teenage boys so learned from the best.!! I know it is terrifying but mine has always stopped, I guess I am used to it? I guess we can adjust to anything. The docs want to know if it is half a cup or so, in case need transfusion, xo