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Heart pounding since diagnosed with cancer: What can I do?

Cancer: Managing Symptoms | Last Active: May 13, 2023 | Replies (59)
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@auntieoakley

Wow, this is quite a journey you have been on. I had a friend who moved back east in order to get HIPEC treatment. We had hunted for treatment for her, this is how I found out that this is rare enough to be considered an orphan cancer. It brings me hope for my barn friend when I hear how well you are doing. What kind of follow up program are you following? Any long term effects?

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cstaryos | @cstaryos | Nov 28, 2021

Please make sure your friend is seeing an appendiceal cancer surgeon with experience with over 200 cases. This is a weird cancer with many presentations and needs a specialist. The gold treatment standard is CRS/HIPEC.

I have LAMN stage 2 which is not aggressive and very very slow growing. My only follow up is a CT scan every six months. More aggressive types of appendiceal cancer can be treated with IV chemo.

Because I had so many things removed or dissected or scraped, I find myself short of breath. My hair is thinning out. I am often tired. Recovery after surgery can be from three months to a year depending on the person.

I worked with an OT & PT in my home. I start outpatient PT in January. Recovery is very long and slow but worth it to be alive. I can share a link to the support group I belong to which might be helpful.

I wish your friend and you all the best in your journey towards better health.

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