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CA 27-29 numbers rising: Does anyone else have an issue like this?

Breast Cancer | Last Active: Aug 16 10:03am | Replies (176)
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@windyshores

If you were postmenopausal, usually you would get an aromatase inhibitor. So on the Cape they gave you tamoxifen? Was this a long time ago?

I advocate for myself. In fact, I sought 4 opinions on my treatment, three of them at major Boston hospitals including Dana Farber.

Regarding stage 4, I get the same answer, if a pain continues and worsens, get a scan. I have pain every day that gets worse. And lobular is hard to diagnose anyway. I just let it go.

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Replies to "If you were postmenopausal, usually you would get an aromatase inhibitor. So on the Cape they..."
Chris, Volunteer Mentor | @auntieoakley | Nov 28, 2021

I agree with the comment that if there is a new pain that doesn’t go away it needs to be investigated.
I am going to admit I don’t always practice this myself as I essentially fell through the cracks of covid. I have really just let myself be invisible to many of my doctors who are too overwhelmed with everything to really notice.
Pre-covid I was pretty stable with an oral medication and bone strengtheners, and Regular 3 month follow ups with everyone.
I still get my refills of oral cancer drugs and I had a bunch of dental work, so I am glad I fell off the edge in regards to the bone strengtheners, though I will return to them when the dental work is done.
I was passed to a cardiologist by my PC recently and he has decided that my problem is mostly my lungs (former smoker) with a bit of reversible shape change in my heart.
I don’t have any appointments with any doctor scheduled, I almost breathed a sigh of relief when I realized it. It might be nice to just slide for just a little while (not too long). It has been years since I didn’t have any appt. to be anxious about.
That being said, I would not hesitate to call someone if I felt something worrisome that didn’t go away.
@mdr3 @jeaniebean @windyshores have you tracked your tumor markers on a chart to see the trends or fluctuations?

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