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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Hi Bev: I have been dealing with MAC/MAI for 8 years. Did the meds for 18..."
Thanks Connie - for your information. I am 75 years old - not so young - however a very young 75 year old. I like the advice to eat first before drugs. I have a doctor apart from my lung doctor who has a foot in both camps. She has decided to begin with colonoscopy which I have had. Now I am on high dose probiotic twice a day and a supplement called SAMe, which she believes mops up inflammation. I will take those supplements on every day I'm not on 3 antibiotics. I love reading and it is important to keep eyesight clear. I do have hearing aids, because of damage to my inner ear from a bad fall 10 years ago. I intensely dislike nausea (who does not). I'm also wondering about taking magnesium, which I always have, while on this regime. I have a life I love, enough friends and family for emotional support. Very aware I am embarking on an unknown journey.
Hi Connie, I am curious, how old are you? I took the pills at 67-8 and they killed me. At first no side affects(one year) but then they all started piling on. I eat organic, work out, am fit but the azithromyacin wiped out bowels,(severe cramping, many bathroom trips, weakness) hearing, (tinnitus) eyesight, (glaucoma) etc. Now I am dealing with the fallout. The mac does get a little worse each year and little harder to breathe, and yes, fatigue, but still moving along, cruises, family gatherings, exercise. My main thing of course is not to get sick...Anyway, I regret taking the pills and am hoping something else comes down the pipe, an inhalant, etc. This is a brutal pill regime. I think you can do it if you are younger. Thanks xo hope to all of us!