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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "I am new to this site. Just found it this morning. Two days from now I..."
@bevmac Hi Bev. Welcome to our site. You can click on my picture and read about my treatment plan. My plan works for me, but understand, it cannot work for everybody. It would depend on the sevetity of your disease, the specie of mac, and your suseptibility results. I hope you are taking the time to read over past posts and scroll through the topics in our discussion board. I am sorry that you have mac, but glad that you have joined our group. Let me know if I can help with any questions you may have. Are you able to navigate this site alright?
Hi Bev: I have been dealing with MAC/MAI for 8 years. Did the meds for 18 months two different times. I am an expert on taking the drugs by now. Going on them again. I have very few symptoms with my disease luckily except for fatigue. Here is my humble advise. When I went to the drugstore and first bought all those pills it was scary. I lined them up on my island and thought- okay guys, we're in this together and we're going to knock this thing. Attitude is everything I believe. I also gleaned advice off of these sites and it worked. I took Acidopholus probiotic everyday that I ordered online (patients swear by it) and a vaginal probiotic to prevent yeast. These drugs kill the good, bad and ugly. Your good bacteria need replacing. Always eat something in the morning before pills. If you go into this stressed, it will add to the side effects. Go into it determined!! The endorphins will mitigate it. I have had a happy life with MAC- travel, built at house, moved to another city, and still cook for all the holidays. Good luck!