I think I understand your frustration. After 5 years I’m still looking for answers. My personal view is that I don’t want to be told there’s nothing that can be done until they’ve done enough convincing diagnostics to be be pretty certain of it. I’ve learned enough so far, much from this group, about what tests are out there and similarities in my symptoms with others who are ahead of me in the journey. My number one goal is to see if I can at least help stop my deterioration and avoid institutionalization. When this unknown condition smacked me suddenly 5 yrs ago, accompanied with an infection those SC doctors say had nothing to do with it, I went from running 3 mikes every day to a wheelchair without hand use to wipe myself, and spent 7 weeks in hospital and rehab to learn life as severely handicapped. After 6 months of rehab, I’ve graduated to walker and have gained a lot of strength back, but still cannot be independent. This group, especially with great mentors like John has given me so much information and guidance to help me live with what I have now, and if it continues to be determined there’s no medical help available. I know now that I am not alone and this group surrounds me with so many people who understand us and can help cut to the chase in a lot of subjects because if research they’ve done ahead of us. I’m sorry, as I feel for myself, that there’s frustration with the lack of medical solutions for permanent solutions, snd hope we create awareness to get more help in researching and curing our neurological conditions.