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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
They say that is what I have now after I have had MAC, taken the "Big 3", had Lung Abscess in hospital for 20 days of multiple ivs.
now they way I have Mycobacteium Gordonae and pseudomonas aeruginosa infection again. They have me on Levequin again. Which is so painful to my joints.
Replies to "They say that is what I have now after I have had MAC, taken the "Big..."
@donut It is probably the pseudomonad that has you so sick. There are other drugs that will knock it out besides levaquin. I cannot take levaquin due to stomach cramps. Ask your dr for an inhalable alternate for the levaquin. Ask about tobramycin. Or Cipro (comes pill form and inhable by a different name).
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@donut I’m so sorry for all the pain and fear you have endured in this journey. I understand too well where you are. I really had trouble with Levaquin, too. Maybe you could let your doctor know it is bothering your joints? Prayers